I have to remember that he gave me permission to blog about this in hopes that someone, ANYONE would have experience with this type of surgery and would come forward and help us to make this hollowing decision. I have to remember that this is for his benefit, not his pity. That this is for advice, and information – that this isn’t about me, or about me telling you how bad it effking sucks.
Of all the awesome people in the world, he’s the number one awesome.
And I’m used to being sick.
I’m used to dealing with this shit. He is not. He shouldn’t have to. And this is too much. It’s just too damn much.
Arachnoid cyst in the pineal region – 2.1 cm. We’re in consultation with the Skull Base Institute in California, because It’s hard to trust any of the surgeons in OK to touch my sweet bald husband. Surgeons who admit to their lack of skill in this area. The doctor called him today to discuss his case. And sure, this doc has been on Ellen, Doctors, NBC, and a million other shows for his talent.
I know this is something we can deal with. I know he will come out the other side of this if we proceed with the removal. IF we proceed with the removal? The pain he’s in makes it impossible not to in so many ways.
They say where his is will be a difficult proceedure, they call it rare and “interesting” and “quite large”.
I just wish they’d shut up. And that it would all go away. And we could go on happily ever after without this “interesting” road bump of a life altering event.
I’m ready to wake up.
But I’ve been waiting to wake up from this nightmare for weeks, and he has for years. WHY WONT IT GO THE HELL AWAY?
So if you have experience with brain surgery, with arachnoid cysts or pineal cysts. Well. We could use it.
And prayers. Oh so many of those.